After Spending 7 Years In The Hospital And Undergoing 28 Surgeries, Here Is How Samira Sanusi Overcame Sickle Cell
- Ayo AL
- November 3, 2017
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Samira Sanusi, a Nigerian writer and sickle cell activist has openly praised her brother Musty Sanusi who donated his bone marrow to save her life 13 years ago.
The young woman took to twitter for publicly commend her brother for the service he rendered to her 13 years ago which kept her from dying.
After the bone marrow surgery which was done in Austria, she pledged to support everything regarding sickle cell till her last breath and her story is one that gives hope to everybody living with this disease.
Here are a few things about Samira
Early Life
Smira was born in 1990 to staunch Muslim parents.
Education
Samira is a graduate of Business Administration from Kaduna State University.
On her struggle with Sickle cell
I was born with Sickle Cell Anaemia, and at the age of 15, I developed health complications due to Sickle Cell Disease (SCD) which sent me on a 7 year journey to fight for my health, life and the disease that was slowly destroying my body and life.
In the middle of this darkness, is where I found – o rm of Bone Marrow Transplant which is known as a cure for the disease. My sister and I had a successful BMT and are now AA and healthier than we have been all our lives.
On her brother who donated his bone marrow to her
13 years ago today Musty Sanusi gave me his Bone Marrow/Stem Cells which cured me of Sickle Cell Anaemia.
13 years ago today @mustysanusi gave me his Bone Marrow/Stem Cells which cured me of Sickle Cell Anaemia. pic.twitter.com/IyDc4zREr1
— Samira Sanusi (@Saamira_S) October 28, 2017
On starting the Samira Sanusi Sickle Cell Foundation.
My battle with Sickle Cell is what inspired me to start the Samira Sanusi Sickle Cell Foundation to help people living with the disease. The foundation raises funds for organisations and clinics that provide Sickle Cell patients with care, aid and treatment.
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SSSC Foundation is committed to supporting the Nigerian government in accelerating provision for management and treatment of Sickle Cell complications, as well as enlightening citizens about the disease, and most importantly, making informed decisions to avoid more Sickle Cell births.
On being a leader of such a tasking Foundation
My experiences in life, living with Sickle Cell Anemia, the 28 surgeries I had to undergo and other health complications I overcame are circumstances that have aged me, forced me to grow and moulded me into the passionate, hardworking woman I am today.
This has earned me the respect, and right to talk to people about the disease and bring up discussions that encourage and motivate individuals or organisations to support and be part of the change.
On how writing her Memoir ‘S is for Survivor’ has affected her life?
It has been healing, there’s something reliving about telling a once painful and untold story. It’s a book that has given people fighting all kinds of battles strength and inspiration, and in turn reminds me that there’s a purpose for my pain and past.
Achievements
Samira was recently named among 100 Arewa influential people. She was awarded the Marine Platform award for writing from Northern Nigeria
