A TENS (Toxic Epidermal Necrolysis) survivor has taken to Instagram to share her story and it is so inspiring.

The 22-year-old model who goes by the name Amber decided to embrace her new reality and enlighten us about her struggles with the disease.

Toxic epidermal necrolysis (TEN) is a type of severe skin reaction, together with Stevens-Johnson syndrome (SJS) that forms a spectrum of disease, with TEN being more severe.

TEN is a life-threatening disorder, These disorders are differentiated by the degree of skin detachment.

Below is what she posted:

View this post on Instagram

? after months of holding onto this picture i’ve come to a place where i finally believe I am ready to share my story. as i’m sure you can imagine; nothing about this was easy so please bear with me and try to be understanding as this may be fairly overwhelming for me. in november of 2019, i visited the er for what i believed was a minor allergic reaction but after a few days under close monitoring the doctors came with a diagnosis no one expected. my family and i were told i had a one in TWO million underlying condition which had been triggered by an unknown cause called steven johnson’s syndrome or TENS( toxic epidermal necrolysis). the tens caused my body to shed its top layers of skin until they removed 80% of it through a very difficult surgery. along with my skin, i lost nails, all hair on my head and body and most of my vision. for 7 long weeks i fought for my life in the ICU and burn unit. i combatted cardiac arrest, hypothermia, potential infections and of course the healing process in itself. a second procedure was done to ensure that i could breathe by successfully completing a tracheotomy and connecting me to a ventilator. truthfully , the majority of the time i spent unable to communicate in a medically induced coma with my eyes taped shut meaning i don’t remember much at all. on christmas day, i was able to speak again. the first thing i did was call my mom and wish her a merry christmas, i’ll never forget the shock on the other end of the phone. that same day i ate my first solid meal and took my first steps. my will to leave the hospital as soon as i could kicked in and sure enough i was released home 3 days later.. emotionally the toll all of this took on me was almost unbearable but i can say i am still on the road to a full recovery and it’s beautiful. see next post for update. #sjs #tens #sjstens #survivor #inspiration

A post shared by A (@amberxirene) on Apr 15, 2020 at 1:15pm PDT

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